Woman, 22, who suffers extremely rare water allergy reported less than 100 times in the WORLD, ‘claws’ at skin after showering to ease ‘worst pain of my life’

Woman, 22, who suffers extremely rare water allergy reported less than 100 times in the WORLD, ‘claws’ at skin after showering to ease ‘worst pain of my life’

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By Caitlin Tilley, Well being Reporter For Dailymail.Com

21:30 04 Mar 2024, up to date 21:36 04 Mar 2024



A younger girl who suffers from an extremely rare allergy to water says her life has been ruined due to the situation, which causes her to ‘claw’ at her pores and skin after showering to ease her ache. 

Loren Montefusco, 22, from South Carolina, suffers a burning itch deep below her pores and skin every time she comes into contact with water – forcing her to keep away from showering for so long as doable. 

The College of North Carolina Wilmington pupil stated she ‘claws’ at her pores and skin to trigger herself ache in an effort to distract from the insufferable itchiness she experiences. 

She first seen her response to water when she was 12 years outdated and was recognized with aquagenic urticaria at 19 years outdated. 

Since her prognosis, Ms Montefusco says her situation has gotten worse and her signs have gotten extra extreme. 

Aquagenic urticaria, which has solely ever been reported roughly 100 occasions, causes hives to kind when an individual’s pores and skin comes into contact with water, resembling within the bathe and pool – and typically even from an individual’s personal sweat. 

Loren Montefusco, 22, from South Carolina, first seen her allergy to water, often called aquagenic urticaria, when she was round 12 years outdated
She suffers a burning itch deep below her pores and skin that may final for greater than an hour each time she comes into contact with water
Loren stated she claws at her pores and skin to place herself in additional ache to distract from the insufferable itchiness

Ms Montefusco says she is compelled to keep away from showering for so long as doable and when she lastly does have to wash, she does in order rapidly as she will to keep away from extended publicity to water. 

She added: ‘It has been tough to navigate as a younger girl, and I believed it was disgusting that I strive to not bathe however fortunate I discovered a gaggle on social media of different victims who additionally refuse to bathe. It makes me really feel much less gross.

‘Dry shampoo is my greatest buddy as a result of the longer I spend within the bathe washing my hair, the more severe it will get.

‘I’ve tried washing myself utilizing a fabric and water, nevertheless it’s nonetheless utilizing water and causes an allergic response so I often have to make use of physique wipes.’

Ms Montefusco first skilled the agonizing signs when she started puberty. 

Whereas little is thought in regards to the uncommon situation, scientific literature has instructed the onset is usually throughout this significant interval of improvement.

WHAT IS AQUAGENIC URTICARIA? 

Aquagenic urticaria causes victims to interrupt out in hives after their pores and skin comes into contact with water.

There are between 50 and 100 identified victims worldwide.

Ladies usually tend to expertise signs, which usually begin round puberty.

The hives are often purple and 1-3mm throughout. They usually seem on the neck, chest and arms.

Some can also expertise itching.

As soon as water is eliminated, the rash often fades inside 30-to-60 minutes. 

Aquagenic urticaria’s trigger is unclear however could also be attributable to a substance in water that triggers an immune response.

Most circumstances happen randomly with no household historical past of the dysfunction.

As a result of situation’s rarity, little is thought about how greatest to deal with it.

Therapies usually embody antihistamines, UV gentle therapies, steroids, lotions that act as a barrier and bathing in sodium bicarbonate.

Supply: Nationwide Institutes of Well being 

More often than not, her response begins from showering and bathing, however she stated she additionally suffers the response after being within the ocean, sizzling tubs, swimming pools and from her personal sweat.

The 22-year-old stated the ache and itching are the worst issues she has ever skilled, and showers as little as doable to stop the signs.

She additionally avoids utilizing physique scrubs or shaving, as they’d set off her response much more.

As quickly as she will get out of the bathe, the scholar has to rapidly totally fabric herself to cease air from hitting her pores and skin, as that heightens the ache as properly.

Ms Montefusco stated: ‘It is horrendous. It feels just like the itch is deep beneath the floor of my pores and skin.

‘I strive my hardest to not itch, however I can not assist it. I claw at my pores and skin to place myself in additional ache so I do not really feel it irritation of the itching. I simply should trip it out.

‘Nothing helps it or stops it [and] it will possibly last as long as an hour.

‘Nothing truly seems on the floor of my pores and skin, because it feels prefer it comes from deep beneath my pores and skin, however my physique turns into purple and irritated from the place I itch.’

The reason for the allergy is unclear, however it’s thought the situation could also be attributable to an allergen or chemical in water – quite than water itself – that triggers an immune response. 

Most circumstances happen randomly with no household historical past of the dysfunction.

Signs can embody the reddening of the pores and skin, burning or prickling sensations, welts or a rash. 

To diagnose the situation, medical doctors will conduct a bodily examination to see what signs somebody has.

They could additionally carry out a water problem check the place they’ll apply a room-temperature water compress to an individual’s higher chest for half an hour in an effort to set off a response.

As a result of situation’s rarity, little is thought about how greatest to deal with it, however some therapies embody antihistamines, UV gentle therapies, steroids, lotions that act as a barrier and bathing in sodium bicarbonate.

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